and the play goes on


It's hammock season again.  Time to put the feet up.


Though all four kids have been well these past two weeks, my body decided to give in to a ugly cold that set up camp without permission.  It left a nasty cough that has finally checked out, thanks to an inhaler and lots of essential oils.

We continue with appointments for Rachel and Janneke at Mac and soon Chedoke to monitor the girls ins and outs.  The most pressing one as of late is the concern with Rachel's feet.  Because she can't tell us everything and because her feet are so uniquely formed, we have to take care to watch how her feet handle the standing frame and her AFOs. We know her feet will never been "normal" but we want to protect her feet from as much discomfort as possible.

Yesterday, we had a chance to celebrate Em and Soph's physical abilities with their school's track and field day.  It is a challenge, helping your kids understand their strengths and weaknesses, but we had good conversations over supper about the day's events - and how attitude is an enormous part of all of it.  It is good for me to listen to the girls because sometimes I am too quick to think, "I am just thrilled that you are so independent and can jump, never mind achieve a first or second standard." I need to understand that Em and Soph have their own personal goals too.



As we celebrate Em and Soph's achievements and talk through their struggles, we are keenly aware of the mini milestones Rachel and Janneke make - and those can feel worlds apart from track and field achievements.

Janneke spent some time cheering me on while I edged the flower weed bed last night.  She spent most of her time listening to the sounds of the lawn mower, birds, and squirrels - and finding the lumpy ground under Aunt Jean's quilt.


Earlier this month, Em took this photo of Janneke and me as we practiced walking outside.  She now wears her feed pump on her back, and she is becoming quite confident in her steps.  She is not independently walking, and she doesn't have the spatial awareness with falling.  But... this is an exciting achievement for our little Janny.


And now we look ahead to more hammock time, time to enjoy the warmer weather and fend off the mosquitoes.  We also look ahead with interest to the upcoming provincial elections, particularly as it relates to the care we need for Rachel and Janneke.  It has been said often that our character as a province and as a country is determined by how we care for the most vulnerable of our population.  A balance of support for the vulnerable and empowerment for those needing work and already working can't be easy to manage and find.  We hope the political parties are listening to the needs of the people and worrying less about knocking down the rivals.  Become an informed voter. What does your contribution (and this is not about money) to your community, to your province, look like? If you are interested, there is a great elections tool kit created by the Children's Treatment Network in Richmond Hill as it pertains to families living with special needs.

peace for your week,
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