Janneke had quite a day. When we arrived at the hospital today, we were surprised that she had an IV in her left hand. Earlier this week, she had a PICC line put in because it was so difficult to get an IV line in the conventional way. Today the PICC line was not working properly when they needed to draw some blood for a test. So shortly after we arrived she was whisked away to get her line cleaned out, as they thought there may have been some clotting in it. This was not a good way to start our visit.
The procedure went very well, however, and she was back in the room in no time. She had a few other specialists drop in on her in the afternoon, and we will talk to her doctor at a later date to hear the results.
Our prayer for her has been that she will be able to breathe on her own again and that she will be able to eat on her own without difficulty. Today, it seemed that the first prayer has been answered. She was taken off the CPAP around 2 pm. At first her breathing pattern was quite irregular, but she seemed to be managing. After a 1/2 hour her breathing pattern stabilized, and Sara was able to hold her for the next two hours. She did wonderfully. Her oxygen saturation levels remained high and she even treated her parents to opening her eyes and cooing.
Our prayer is that she will continue to breathe on her own, and that we will be able to start oral feeds over the next few days.